Why does everything with Scarlette always result in surgery. There is never an "easy" fix with her. And usually the solutions are only found after lots and lots of appointments that get us nowhere. A couple weeks ago we saw the ENT docs b/c Scarlette's ear tube fell out. They mentioned that Scarlette's tonsils are abnormally large, and usually that is accompanied by large adenoids. They think that this is the cause of Scarlette's severe congestion/mouth breathing etc and that if it persisted we should consider a tonsillectomy/adenoidectomy. We hoped it wouldn't come to that and mentioned it to the allergist but she also felt it was anatomical rather than allergies. Today, Scarlette's feeding therapist said that it's become so much work for her to breathe that it's inhibiting her eating, making it impossible for her to eat by mouth comfortably. She also recommended the procedure to be done to aid in feeding and speech development. SO now we are adding ANOTHER surgery onto our plate. Ideally they would like to group as many surgeries together as possible so Scarlette won't have to be sedated as often.
They are hoping the first surgery will consist of: her tooth being pulled, her inguinal hernias being repaired and her tonsillectomy/adenoidectomy. Her second surgery will just be cardiac, they don't really want to piggyback on to heart surgery (understandably so!)
I am just tired of ALL her issues having to be surgically fixed, I wish we could just give her medicine and her congestion could go away. I get that her anatomy is slightly different but still, where is my magic wand to wave all of this away!!!
Here's a pic of my stuffy, snorty little bugger!
Aww, I'm sorry you and Scarlette are having to go through all of this! I'm praying for both of you.
ReplyDeleteHello and thanks for commenting on Raising Diaphragmatic Hernia. I would LOVE to feature Scarlette. I do a child every week. She sounds like such a strong little girl. I can't wait to read more about her. If you like you can email me and I'll send you all the details.
ReplyDelete~Terri Helmick
http://avaslifewithcdh.blogspot.com
http://cdhkids.blogspot.com
My email is mycdhlife@gmail.com
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