Hello to everyone!
I am sitting in Scarlette's hospital room and it is 7 a.m. and I thought I would update everyone about Scarlette's surgery and recovery. It was definitely not without its trials but as the end is now in sight it makes everything worth it! Her surgery lasted about 4 hours and could not have gone more smoothly. It was done thorascopically, meaning they made small incision and inserted a camera, then made another small incision and inserted the device used to attach her diaphragm to her chest wall. She had enough diaphragm in the back to cover what she was missing in the front so they were able to pull it up and attach it without any major complications. On Wednesday night she had a minor bradycardia, where her heart rate dipped into the 80's so they did a chest x-ray and thought that it might be due to oversedation. She had two more episodes on Thursday which led them to believe it was due to pain from her chest tube but since it was still draining fluid they could not remove it. At this point they put her on a higher amount of oxygen and did another x-ray. They found that her left lung had collapsed, due to pain and being positioned on that side for the length of the surgery. They had to put her on different form of oxygen on Friday to give enough pressure to pop her lung back open. By Saturday afternoon everything had resolved itself and both lungs looked really good. So they put her back on 2 L of low flow oxygen and monitored her. On Sunday, she was weaned down to 1 L and then 1/2 L, then Sunday night she was moved from the ICU to the surgical ward. I spent the night with her last night and did all her feedings and she took her entire bottle every single time! We also decided to take her off he O2 and as I sit here now she has been off of it for 13 hours and is doing amazing! She gets to come home today, at noon and off o oxygen!!!
This journey has been amazingly tough, but the Lord has granted all of us such peace and patience. My sweet little Scarlette has definitely been healed, and as if that wasn't enough for the Lord to bless us with this morning, for the first time ever, she smiled at me intentionally! It was the biggest, most beautiful smile I have ever seen!! What a joy this child is to behold, and what a testimony of the Lord's faithfulness to us.