Things have been crazy! I am sorry I haven't updated. We have been home a week now and are still getting used to the tube. Scarlette seems to have no problems with it other than healing from the pain. It has taken her longer than we expected to heal, but having three procedures done at once it should come as a surprise to us!
She is still taking 2 oz by mouth for every feed, and we are up to 3/4 container of baby food daily. Before the surgery she was getting 2 to 3 containers so we are trying to get her back up to that. We can't wait until her tube is completely healed and causes her no more pain. It's been so nice to feed her for only 15 minutes and then put the rest through the tube. Babies are not supposed to take more than 15-30 minutes to eat because then the physical exertion is more than the caloric intake and it can actually be detrimental to weight gain. It was taking us one to two hours to feed Scarlette every bottle prior to the surgery. Not good for her or us.
We go to see the surgeon, the dietician, the speech therapist and the GI team for post-op follow-ups next month. We are praying that she starts gaining weight quickly, although so far she has not gained an ounce since the surgery. She is exactly 13 lbs!
Also, she gets her new hearing aid on Jan. 6th and we are excited to see what changes it creates for her to be able to hear normally.
It's Christmas Eve today, and we are so excited to get to spend time together as a family, and get to see my grandma, aunt and uncle and cousins tomorrow! We are so fortunate to have some family here on the East Coast! To all our family on the West Coast, we love you and wish we could be there with you! Merry Christmas!